Welcome Back Preschool, I've Missed You!

 

 

The joy!

 

 





 

 

Drew and Emma are back in preschool! Woohoo!! I can only hope that when they are 16 years old they will be this excited to go to school!

 

 

One of my favorite things is that Emma and Drew has the nicest friends, teachers and nurse! It is very difficult to have a child with many disabilities go into a public school and get the services they need. I must say we don't live in the best town in the state, but the reactions and love that my children get is amazing. Yes, Emma is different medically then most, but she is in her element walking in saying hi to everyone that she has missed most of the summer. (Emma needed to go to summer school to keep her skills up) Drew is a bit quieter and is learning to speak up but the minute they see their teachers, they give each other a big hug and kiss and off they go! I'm just a proud Mom!

 

 



Make A Wish!

We are so excited that Emma has been accepted into the Make a Wish program of Massachusetts and Rhode Island. I never dreamed that I would have a child going on a Make a Wish trip!

Once Emma had her second failed decannulation we knew something wasn't right. We knew that a second opinion was needed. We decided to go to another Boston hospital and found out after some testing that Emma's vocal cords are paralyzed. When we tell people they say "she talks though", yes she does talk but her voice quality is not very good. We learned that her left vocal cord has complete nerve damage and the right has slight nerve damage. The good news is maybe one day her right vocal cord might work again. Jon and I are weighing our options and have not decided on what we should do. With the vocal cord issue this may be one but not the only reason she has failed decannulation.

When all this sad news was coming at us we heard from one of our wish granters! They were excited to come over and meet Emma and find out what her wish would be!

Emma's amazing wish granters!

 

 

 

 

Emma was given many gifts and some for Drew too! Then came the list of questions, Emma's favorite things! This is when Emma got shy! Finally after pulling the toys away a little voice said "I want to go to Disney World with my trach!"

 

 

As of now we are waiting to hear back of our dates for our amazing trip to come!